Sunday, October 31, 2010

Halloween fun. Halloween scary!

We had a great Halloween. The day began with a call from Trey. He shot his first deer!!! He was so excited. Later, we baked Halloween cookies, carved pumpkins, made cupcakes and got ready to go trick or treating. Pictures coming soon!

Now for the scary part...Madeline has complained that her knee, ankle and neck are hurting her. I'm trying not to freak out, but it's lingering in my mind. Her biggest complaint is her neck. Please pray for her and that this is just a freakish coincidence. We are so close to remission, we can't go backwards.

Positive thoughts...I'm trying. :(

Monday, October 25, 2010

Is fall ever going to come???



It's hot here. Not unusual for Louisiana, but I'm tired of summer and really ready for some cool air so we can get in the mood for Thanksgiving...which is just around the corner. In fact, it was so hot yesterday my husband swam after mowing the yard. Really?!?!

But, there's hope fall is coming. One sure sign - the black eye'd susan's blooming everywhere. Madeline and I decided to do a mini photo shoot around these pretty, happy flowers. Thought I'd share her pretty picture. She is growing up so fast. My little girl too is blooming into a beautiful young lady.

Thursday, October 21, 2010

A little sneak peek...

Here is a sneak peek of Madeline's new solo - Funky Jesus Music. It's fun and makes you want to dance. She's just learning the dance so this is a rough, learning clip of probably half the dance.

In the video is her teacher Colinda - one of the sweetest, talented people you could ever meet. Madeline loves her. But notice...Madeline is taller than Colinda now. She is getting very tall and very long legged. She's beautiful, but I guess I am partial. :)

Enjoy and more to come...
video

Tuesday, October 19, 2010

Another Update

I've felt guilty for not updating Madeline's blog lately. But when you don't have much to talk about regarding her JDM (which is the purpose of this blog)I shouldn't feel guilty but relieved...which I am.

Madeline's life has been busy with school, cheerleading, dance and friends. She is working on her new solo for competition this year. I will attempt to post what she has learned so far, but it is no where near polished. She normally does a ballet style routine and this time we are pushing her in a jazz/hip hop direction. She is doing great.

So far no illnesses, no issues. All still good. Life is good.

Monday, October 4, 2010

Quick Update

Madeline is doing great. Seems to get stronger and more limber than ever. Between taking dance and cheering this year, she is handling the strenuous activities better than most kids.

We only have a few months to go back to Texas for her check up w/ Dr. W. Looks like she will get a clean bill of health. We are confident and optimistic.

Hope this gives hope to others...your children w/ JDM CAN get well.

New Years Eve 2007

New Years Eve 2007
Her rash on New Year Eve 2007. We were treating at this time as poison ivy.

Madeline, January 2008

Madeline, January 2008
Here is a picture of Madeline (2008) at her classroom birthday party. Here you will notice her malar rash and grottron's papules on her hands. Of course at this time we had no idea what was going on.

Madeline, January 2009

Madeline, January 2009
Here is a picture of Madeline at her 9th birthday party. The only redness you see now is the nornal redness from running around at your birthday party. My, what a difference a year makes.