Thursday, July 29, 2010

We have colds and FEVER!!!

hey its Madeline now here's my mom

Okay, guess she wanted to make her presence known. Any hoo....Madeline and Trey both have terrible colds and coughs. Madeline began with the coughing several days ago. Looks like she shared her germs with her brother. He is running a low grade fever too.

But....the real FEVER around our house is the BEIBER FEVER!!! Yes, Madeline was surprised by a special "ANGEL" today with two tickets to the Justin Beiber Concert this Sunday in Lafayette. This is Madeline's first concert. She was so excited when I broke the news to her today after dance. I still don't know if it has sunk in quite yet. She can't believe it!!!!

A special, special thank you to our Angel who I know reads this blog on a regular basis. We love you and appreciate your generosity. Madeline will NEVER forget this special event - her first concert with the HOT, HOT, HOT Justin Beiber. :)

Thursday, July 22, 2010

Family pics in Floirda

I never posted a few pics from our Florida vacation. Thought I'd share. Two months down with no meds, no issues, no JDM!!!

Click here to view these pictures larger

Wednesday, July 14, 2010

Bumps are better

I've attached pictures of the mysterious bumps on Madeline. The good news...they are getting better. The one on her face is the slowest to heal. I'm sure she's messing with it, which I keep telling her to stop doing.

Thanks for the feedback and suggestions. I appreciate it!!! Thank goodness this turned out to be uneventful.

Monday, July 12, 2010


Madeline has boil like bumps on her legs. I'm doctoring them closely with the hopes this is not staph. It started out with three on her thigh, but has now increased to around 10 - 12 on both legs. Plus, she has one on her face that I'm not sure if it's a "pre-teen pimple" or the same boil like bump on her legs. As Madeline said last night, "Mom, neosporin and I are getting really close - we're like peas and carrots". Gotta love humor combined with a little Forrest Gump.

I'll take a picture tonight and post. Any insight appreciated.

Wednesday, July 7, 2010

All of our miracles

I accidentally came across this spot by a google alert I was sent. I watched this video and others about this sweet, beautiful girl Andie. I couldn't help but look at her eyes and see Madeline two years ago. Andie has that same look around her eyes Madeline stayed with constantly, that look of darkness, redness, sickness.

Andie has JDM and is currently in a coma. Please pray for her and all of our babies who are our miracles fighting this terrible disease.

Get Well, Andie.

New Years Eve 2007

New Years Eve 2007
Her rash on New Year Eve 2007. We were treating at this time as poison ivy.

Madeline, January 2008

Madeline, January 2008
Here is a picture of Madeline (2008) at her classroom birthday party. Here you will notice her malar rash and grottron's papules on her hands. Of course at this time we had no idea what was going on.

Madeline, January 2009

Madeline, January 2009
Here is a picture of Madeline at her 9th birthday party. The only redness you see now is the nornal redness from running around at your birthday party. My, what a difference a year makes.