Monday, October 31, 2011

Happy Halloween & Dr. Appt. Tomorrow

We are excited to have some Halloween fun tonight. Madeline, and her best friend Emily, are dressing as cowgirls. I will post pictures of course. Tomorrow we head to Texas for her doctor's appointment. Her dad and I are optimistic, just nervous about what medication they will try this time. Hopefully, we can just do the same thing...which we know and are very comfortable with.

Please say a prayer for Madeline, for us!!! We will post an update soon after the appointment.

Thanks for the support.

Monday, October 3, 2011

It's back...

You know, when life is back to normal, it's really a hard kick in the gut when you realize there is no longer a "normal". Madeline's rash is back. We discovered it last night at the dinner table as she was telling a story and raised her arms explaining her scenario. And that's when her dad and I saw it clear as day...those bumps and the redness on her elbows. I instantly felt sick to my stomach. Her daddy, too.

It came so quickly. Just last week they were not there. I'm confused and angry, but mostly just sad. Here we go again. I thought we were going to be the exception.

We've called her specialist and we will go to Texas in a few weeks. I guess it starts all over...the meds...the stomach aches...the fear...the JDM.

Prayers needed, please.

Thursday, March 10, 2011

I know...we disappeared

We've had a tough three months in my family. Beginning November 24, my daddy was admitted to the hospital. He passed away December 28. Thanksgiving was not celebrated, Christmas either. I've not had interest in posting on the site, and I am sorry for that.

I did want to share Madeline's beautiful story shared on our local station and developed by a great anchor Joy Howe.

Madeline is still doing great. She is now 12 years old and taller than me.

I will get back on the blog, just still trying to get over our very large loss.
http://youtu.be/KOtwbKKhKZI

Turning Pointe: Madeline's Story

Turning Pointe: Madeline's Story

New Years Eve 2007

New Years Eve 2007
Her rash on New Year Eve 2007. We were treating at this time as poison ivy.

Madeline, January 2008

Madeline, January 2008
Here is a picture of Madeline (2008) at her classroom birthday party. Here you will notice her malar rash and grottron's papules on her hands. Of course at this time we had no idea what was going on.

Madeline, January 2009

Madeline, January 2009
Here is a picture of Madeline at her 9th birthday party. The only redness you see now is the nornal redness from running around at your birthday party. My, what a difference a year makes.