Monday, May 31, 2010

Off to the Lone Star State

We leave bright and early tomorrow for Madeline's check up with her pediatric rheumatologist, better known on this blog as Dr. W. Madeline's excited to go because she believes he is going to take her off all of her meds. We shall see. I will post our checkup update as soon as I can. It probably will be Wednesday though.

We had a great Memorial Day. We celebrated this important holiday with family and food, of course. It was a beautiful day and a fabulous, long weekend. I think we actually swam for 10 hours today...no joke. We will all sleep well tonight.

Friday, May 28, 2010

This little light of mine...I'm gonna let it shine

Madeline danced in four dance recitals last Saturday. Talk about a long day!!! She was wonderful. She always makes me so proud. I am so happy and blessed that she can still do what she loves the most - dance! Thank God her medications are working for her and JDM has not taken her love away.

I thought you'd like to see some the pictures. She is beautiful.

Click here to view these pictures larger

Tuesday, May 25, 2010

Blood day


Madeline came to work with me today. She needed to have her blood drawn for our upcoming doctor appointment w/ Dr. W in Texas. She was a trooper...a real pro. I snapped a picture of her all smiles. Brave girl!

Monday, May 17, 2010

Last day as a 5th grader!


Today was Madeline's last day of school. She made us proud, of course, at her awards program. She was recognized for her grades and Beta. She had such a great year. Congrats, baby girl!!!

I can't believe she is now officially a sixth grade student. My how time is flying. It REALLY needs to slow down. Luckily, we have a beautiful, smart, talented little girl who knows and understands how important it is to give your best always. thanks, Madeline. You make us proud every day.

Now, on to summer fun!!!

Thursday, May 13, 2010

The magnolias are just a bloomin



We have several magnolia trees in our yard and they are blooming beautifully this year. The smell is intoxicating. Love it!

Only two full days of school left in our parish. I can't believe Madeline will be in the sixth grade and her brother the ninth. Time is going too fast.

Speaking of time going fast, we will head to Texas in a few weeks for Madeline's check up. And we all know what that means...we need to go have her bloodwork done again.

Thursday, May 6, 2010

Oh yes she did!


This would be the nail that Madeline stepped on this week. Her daddy had to pull it out of her foot. Better him than me! It's healing well, but now she has a chest cold. We just can't seem to keep her well lately. Her JDM is still staying in line though, thank goodness.

Our other bad news...the oil spill. Besides the souls lost from the accident, the beaches, marshes, etc. are begining to be invaded by the oil. We are hearing the smell is punjent and making many ill. We had planned to go to the beach in June. We'll have to cancel and figure out somewhere else to go. So sad!

New Years Eve 2007

New Years Eve 2007
Her rash on New Year Eve 2007. We were treating at this time as poison ivy.

Madeline, January 2008

Madeline, January 2008
Here is a picture of Madeline (2008) at her classroom birthday party. Here you will notice her malar rash and grottron's papules on her hands. Of course at this time we had no idea what was going on.

Madeline, January 2009

Madeline, January 2009
Here is a picture of Madeline at her 9th birthday party. The only redness you see now is the nornal redness from running around at your birthday party. My, what a difference a year makes.