Friday, August 20, 2010

Came across this post today...breaks my heart...please VOTE!


Another parent with a JDM child had this posted on their blog today. I wanted to share it as well for it's a good reminder about the seriousness of this disease - this disease that our baby girl has fought herself. Here it goes...

Cole Flack of Oregon received his diagnosis of juvenile dermatomyositis in February 2007, roughly four-and-a-half years after Thing 1 received hers.

In the years that followed, this teenager with a love of sports and being outdoors became too weak to even walk. Cole endured multiple abdominal surgeries to deal with gastrointestinal issues caused by the disease and its medicinal treatments. Yet as recently as the fall, he still managed a full course load at school and compiled a 4.0 GPA.

Earlier this month, Cole went into the hospital with pneumonia.

Yesterday, we received this e-mail written by his parents:

“Hello friends and family,
Cole went to be with the Lord at 7 p.m. tonight. It was very peaceful. Cole is free now to run ... jump ... play baseball ... everything a 15 year old boy should be able to do. …”

Cole is the third child with a form of juvenile myositis that our family has come to know since Thing 1’s diagnosis to die from this rare autoimmune disease or its complications.

Three.

When only three in a million children are diagnosed annually in the United States with this disease, that little number grows exponentially in your worried head every time your child coughs or sneezes or scraps a knee.

Please help prevent more deaths of children like Cole by continuing to vote every day this month to help Cure JM, the only national nonprofit dedicated to supporting children with juvenile myositis and their families, win a $250,000 Pepsi Refresh grant. Every penny of that grant is set to pay for research into finding the cause and cure of juvenile myositis, juvenile dermatomyositis and other forms of JM diseases.

Right now, we are No. 2 in the standings – we need to hold this position until Sept. 1 to win the grant money. The only way that can happen is with your help.

You can vote up to 3 TIMES, every day, during the month of August!
(1) Send a text vote: Text 100850 to Pepsi (73774) (standard text messaging rate apply)
(2) Use the Facebook app: http://bit.ly/CureJMonFB
(3) Vote directly from the Pepsi website site for our Cure JM and its affiliated causes at http://pep.si/CureJMKidstoWin4

1 comment:

Summer said...

This really hits home hard! I saw this on Ericka's blog (Gary) and I posted about it as well!!

I have everyone I know voting for Pepsi Refresh and about 2 dozen of my blogger friends have posted on it as well throughout the month!! I posted again about it today

My thoughts and prayers are with Cole's family and it is just so heartwrenching to read about this....

Summer