If you are reading on this site you know...I'm a parent with a child diagnosed w/ Juvenile
Dermatomyositits - a rare form in the juvenile arthritis family of diseases. I came across this information online and wanted to share with anymore who may not know how many children are affected by arthritis. On my site, I have a
firstgiving block. If you feel compelled to make a donation to Cure
JM - the organization my daughter's disease is most associated with - please do so. And thanks...
When we are becoming parents, our one wish is that we have happy, healthy children and that no harm comes to them. Imagine if your child were living with pain every single day of their lives. This pain can be controlled but not eradicated. There is no way to prevent it and no cure- only hope to keep the progression to a minimum and the child in as little pain as possible. Can you imagine how you would feel? I know how it feels...it's the absolute worst feeling possible.
July is National Juvenile Arthritis Month. Facts from the Arthritis Foundation:
Juvenile arthritis (
JA) refers to any form of arthritis or an arthritis-related condition that develops in children or teenagers who are less than 18 years of age. Impact of Juvenile Arthritis: Approximately 294,000 children under the age of 18 are affected by pediatric arthritis
and rheumatologic conditions. Juvenile arthritis is one of the most common childhood diseases in the United States. Common Symptoms of Juvenile Arthritis: Pain, swelling, tenderness and stiffness of joints, causing limited range of motion• Joint
contracture, which results from holding a painful joint in a flexed position for
an extended period• Damage to joint cartilage and bone leading to joint deformity and impaired use of the joint• Altered growth of bone and joints leading to short
statureTypes of Juvenile Arthritis:•
Polyarticular JA affects five or more joints and affects girls more frequently than boys, most commonly affects knees, wrists and ankles can affect weight-bearing and other joints, including hips, neck, shoulders and often affects the same joint on both sides of the body•
Pauciarticular JA affects four or fewer joints and usually affects the large joints: knees, ankles or wrists often affects a joint on one side of the body only, particularly the knee may cause eye inflammation (
uveitis) which is seen most frequently in young girls with positive anti-nuclear antibodies (ANA)• Systemic Onset
JA can affect boys and girls equally cause high, spiking fevers of 103 degrees or higher, lasting for weeks or even months cause a rash consisting of pale, red spots on the child’s chest, thighs and sometimes other parts of the body; cause arthritis in the small joints of the hands, wrists, knees and ankles. Other Types of Juvenile Arthritis:• Juvenile
Spondyloarthropies (
ankylosing spondylitis,
seronegative enthesopathy andarthropathy syndrome) are a group of diseases that involve the spine and joints of the lower extremities, most commonly the hips and knees.• Juvenile
Psoriatic Arthritis is a type of arthritis affecting both girls and boys that occurs in association with the skin condition psoriasis.• Juvenile
Dermatomyositis is an inflammatory disease that causes muscle weakness and a characteristic skin rash on the eyelids and other areas such as knees, ankles, elbows, wrists, chest and hands.• Juvenile Systemic Lupus
Erythematosus is an autoimmune disease associated with skin rashes, arthritis, pleurisy, kidney disease and
neurologic movement.• Juvenile
Vasculitis is an inflammation of the blood vessels and can be both a primary childhood disease and a feature of other syndromes, including
dermatomyositis and systemic lupus
erythematosus.
Causes of Juvenile Arthritis:
The cause of most forms of juvenile arthritis is unknown, but it is not contagious and there is no evidence that foods, toxins, allergies or vitamin deficiencies play a role. The primary goals of treatment for juvenile arthritis are to control inflammation, relieve pain, prevent joint damage and maximize functional abilities.
How does the Arthritis Foundation help?The Arthritis Foundation supports research, health education and government advocacy efforts
to improve the lives of the nearly 46 million Americans with arthritis, one of the nation’s
most common causes of disability. Check them out at
www.arthritis.org.
As mentioned earlier, another organization closer to my daughter's disease is Cure
JM. They are also doing great things. Check them out at
www.curejm.com. Today, I ask for you to take a moment to give thanks for the healthy children or grandchildren in your life and then check out these sites to learn a little more about these
debilitating diseases that affect so very many children.
